Shape how lived experience of those affected by Motor Neurone Disease (MND) is embedded in research processes and impact. As Research Engagement and Involvement Manager, you will lead engagement across a wide research portfolio, working with researchers, the MND Community, and external partners to influence decisions and outcomes that matter.

You will join the Motor Neurone Disease Association’s Research and Innovation team, where involvement is central to how research is designed, delivered and shared. The Research Engagement and Involvement Manager plays a key role in ensuring research reflects diverse experiences, participation and representation to support progress in MND research innovation.

Key Responsibilities

Lead involvement and engagement across the research portfolio
Design and implement research engagement strategies and activity, promoting awareness and understanding of MND research
Manage and grow initiatives including MND Encourage UK
Support researcher understanding and good practice in involvement approaches
Organise and lead events, webinars, seminars, podcasts and workshops with researchers and the MND community
Evaluate and report on the impact of initiatives, ensuring inclusivity and ethical standards
Work with internal teams to ensure clear, joined-up messaging
Represent the MND Association in external collaborations and networks

About You

Degree (or equivalent experience) in biological sciences, public engagement, or a related field
Experience leading or supporting public and patient involvement and engagement (PPIE) initiatives in research
Experience leading or supporting involvement in research
Strong understanding of involvement standards and methods
Ability to communicate and interpret complex scientific research clearly
Experience working with diverse and underrepresented communities
Confident relationship builder with researchers and stakeholders
Excellent organisation skills with strong project management skills

Hybrid working expectations: one day per week office attendance in Northampton

Further information about MND Association and full job description is available in the attached Candidate Pack.

We are committed to equality, diversity, and inclusivity. We work to remove barriers for everyone affected by MND, employees, volunteers, and stakeholders.

As part of the Disability Confident Scheme, we guarantee interviews for disabled applicants who meet the role's requirements.

What We Offer

28 days holiday, increasing to 33 days after 5 years, plus Bank Holidays
Access to UK Healthcare, including dental, eyecare, health screenings, and therapies
24/7 GP access via phone and video
Life assurance and confidential counselling helplines
Salary sacrifice schemes (Cycle to Work, Buy/Sell Annual Leave)
Access to Benefit Hub for discounts on everyday shopping
Enhanced pension scheme
Opportunities for training and personal development
Hybrid working

About Us

Motor Neurone Disease moves fast. It takes away time, it takes away independence and it has no cure. Every day we support people affected by MND. We fund ground-breaking research. We campaign for better care. We’re here for everyone who needs us. Because with MND, every day matters.