As Head of Campaigns, Policy and Public Affairs, you will lead our work in securing policy changes that makes things better for people affected by Motor Neurone Disease (MND).

Too many people affected by MND are not getting the right level of care and support. So you will be responsible for the policy development, political and governmental engagement, and campaigning to address this. So along with a compassionate and nurturing leadership style, you will approach the role with pace and ambition, and a real impatience to deliver meaningful change.

MND awareness has increased dramatically, including among policymakers. So this is an opportunity to use your skills and experience to make a real difference to people with MND and their loved ones.

Key Responsibilities

Lead, manage, develop and deliver impactful campaigns, policy and public affairs activity with impact for people affected by MND
Set priorities that reflect evidence, lived experience and political opportunity
Develop relationships and influence decision‑makers across Westminster, the Senedd and Stormont
Build strong relationships with policymakers, the NHS and sector partners
Ensure campaigns are planned, bold, creative and urgent in delivery
Strengthen and support our community of campaigns volunteers
Chair our internal access to treatments group
Lead, support and develop the Campaigns, Policy and Public Affairs team
Act as a key external spokesperson for the Motor Neurone Disease Association

About You

An exceptional level of drive and ambition, and an infectious sense of impatience for the policy changes that will make life better for people affected by MND
Proven success securing policy change through campaigning
Excellent understanding of the policy landscape and a good understanding of how policy decisions are made
Sophisticated influencing skills and political insight
Experience leading, motivating and inspiring teams
Clear, confident written and verbal communication
Commitment to shaping work with people affected by motor neurone disease
Experience of partnership or coalition working
Experience of budget planning and financial oversight

Hybrid working expectations: London office attendance one day per week

Further information about MND Association and full job description is available in the attached Candidate Pack.

We are committed to equality, diversity, and inclusivity. We work to remove barriers for everyone affected by MND, employees, volunteers, and stakeholders.

As part of the Disability Confident Scheme, we guarantee interviews for disabled applicants who meet the role's requirements.

What We Offer

28 days holiday, increasing to 33 days after 5 years, plus Bank Holidays
Access to UK Healthcare, including dental, eyecare, health screenings, and therapies
24/7 GP access via phone and video
Life assurance and confidential counselling helplines
Salary sacrifice schemes (Cycle to Work, Buy/Sell Annual Leave)
Access to Benefit Hub for discounts on everyday shopping
Enhanced pension scheme
Opportunities for training and personal development
Hybrid working

About Us

Motor Neurone Disease moves fast. It takes away time, it takes away independence and it has no cure. Every day we support people affected by MND. We fund ground-breaking research. We campaign for better care. We’re here for everyone who needs us. Because with MND, every day matters.